ASOCIACIÓN ARAGONESA DE RETINOSIS PIGMENTARIA

Nombre:
ASOCIACIÓN ARAGONESA DE RETINOSIS PIGMENTARIA

Página web:

Teléfono: 976 282 477

Correo electrónico: mtmelero@able.es

Dirección postal:
Pº Echegaray y Caballero, 76 Edificio ONCE 50003 Zaragoza

Ámbito / Especialidad:
Aragón

Breve descripción:
Objectives:

  • To know the real impact of this disease in Aragon; retihinosos pigmentosa is a group of genetic diseases, of congenital-inherited origin which damage the retina and are characterized by causing a gradual loss of vision.
  • To promote research, raising awareness among both public and private organizations to support our Research Fund.
  • To collaborate with IRPA (International Association of Retihinosis Pigmentosa), to which we belong as full members, by attending international congresses and meetings.
Services and Activities:
  • Advice and guidance on Retihinosis Pigmentosa.
  • Accompanying in negotiations, mainly sanitary.
  • Helping the patient to incorporate to ONCE (National Organization of Spanish Bñlind People)
Our Volunteers:
  • Our volunteers are mainly relatives of people suffering from retihinosis pigmentosa.
  • They work together in the activities that we carry out in our association.

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