Nombre:
FEDERACIÓN DE ASOCIACIONES DE DISTROFIAS HEREDITARIAS DE RETINA DE ESPAÑA
Página web:http://www.retinosisfarpe.org/
Teléfono: 915320707
Correo electrónico: farpe@retinosisfarpe.org
Dirección postal:
C/ de la Montera 24, 4º J
28013, Madrid
Ámbito / Especialidad:
Nacional
Breve descripción:
The Federation of Spanish Hereditary Retinal Dystrophies Associations, is made up by 11 national associations that work to improve the living conditions of people suffering from retinitis pigmentosa and other retinal dystrophies
The aim of the Federation and its member Associations, is to progress in the knowledge
of the causes and consequences of hereditary retinal dystrophies, with the intention of enabling treatments to lessen their effects and, eventually, to cure them and eliminate them.
Objectives: