ASOCIACIÓN DE AFECTADOS POR DISTROFIAS HEREDITARIAS DE LA RETINA, RETINA BIZKAIA BEGISARE

Nombre:
ASOCIACIÓN DE AFECTADOS POR DISTROFIAS HEREDITARIAS DE LA RETINA, RETINA BIZKAIA BEGISARE

Página web:http://www.begisare.org/

Teléfono: 646 787 112

Correo electrónico: bizkaia@begisare.org

Dirección postal:
c/ Castaños, 11. 48007 Bilbao. Bizkaia. CENTRO CÍVICO CASTAÑOS. (3ra Planta, sala 33)

Ámbito / Especialidad:
Vizcaya

Breve descripción:
The association of people affected by hereditary retinal dystrophies RETINA BIZKAIA BEGISARE, was born in 2016 as a non-profit organization to offer assistance and support to affected people of Bizkaia, including within its scope of action not only retihinosis pigmentosa, but all inherited retinal dystrophies. We foster research in retinitis pigmentosa through the research project which, promoted by Retinosis Gipuzkoa Begisare, is being carried out by Biodonstia Institute, as we are the core  of the research and have a team of experts close and easily available.

  • We are raising awareness about our disease, about how it is to live with a hereditary retinal disease, and about the crucial importance of research  for us.
  • We represent people affected by retihinosis pigmentosa and other  hereditary retinal dystrophies before public institutions and organizations.
  • We work to support  affected people and their surrounding society by organising psychological counselling groups, training meetings,  conferences with outstanding research teams and social, cultural and sporting activities.

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